Caregiver resources

Plain-language guides for family caregivers.

No jargon, no medical school required. Just the practical things we wish someone had told us at the start.

Practical guides

Start here.

6 guides

Your first 30 days as a caregiver

A gentle starter checklist for when you've just stepped into the role and everything feels urgent at once.

  • Make a list of every medication, the dose, and the prescriber
  • Gather insurance cards, ID, and the most recent doctor's notes
  • Identify the primary care provider and any specialists currently involved
  • Ask your loved one (or their existing caregiver) where the legal documents live
  • Pick one person — sibling, spouse, friend — to be your second pair of eyes
  • Write down three questions for the next doctor's visit

Organizing medications without losing your mind

Medication mistakes are one of the leading causes of avoidable ER visits. Here's how to set up a system that actually holds.

  • Keep a single source of truth — one list, updated every time something changes
  • Note the purpose of each medication ('for blood pressure', 'for sleep') — you will forget
  • Photograph each pill bottle so the prescriber, dose, and pharmacy phone number are easy to find
  • Set reminders at the times your loved one actually takes them — not when it's convenient for you
  • Bring the full list to every appointment. Doctors only know what you tell them.

How to get more out of every doctor's visit

You usually get 12–15 minutes. Here's how to make them count.

  • Write down your top three questions before you go. Three is the right number.
  • Bring the current medication list (with doses and times)
  • Note recent symptoms with dates — 'foot swelling on Tuesday and Friday' beats 'sometimes her feet swell'
  • Ask: 'What should I watch for at home?' and 'When should I call you vs. go to the ER?'
  • Repeat back the plan in your own words before you leave
  • Get the visit summary printed or emailed — you won't remember half of it by dinner

Talking to family without group-text chaos

Coordinating siblings or extended family is its own job. Here's how to keep everyone in the loop without burning out.

  • Pick one channel. Group text + email + phone calls = no one knows what's true.
  • Send updates on a schedule (e.g., every Sunday evening) instead of every news flash
  • Be specific about what you need: 'Can someone cover Tuesday?' beats 'I'm overwhelmed.'
  • Decide who has medical decision-making authority before there's a crisis
  • If anyone is in denial about the situation, share the doctor's notes — they're harder to argue with

The legal documents you actually need (and why)

You don't need a lawyer for everything, but you do need the right paperwork before a crisis.

  • Healthcare Proxy / Healthcare Power of Attorney — who makes medical decisions when they can't
  • Durable Power of Attorney (financial) — who handles money and bills
  • Living Will / Advance Directive — what kind of end-of-life care they want
  • HIPAA Release — who the doctors are allowed to talk to
  • Original copies live somewhere safe; copies travel with you. Hospitals need to see them.

When a loved one has memory loss

Caring for someone with dementia, Alzheimer's, or general cognitive decline asks for a different kind of organization.

  • Keep familiar routines — predictability reduces anxiety for both of you
  • Label drawers, cabinets, and rooms with simple words or pictures
  • Repeat questions are not on purpose. Answer with patience the 14th time the way you did the 1st.
  • Keep a one-page summary of who they are (career, family, hobbies) for new caregivers and aides
  • Take photos of the medication routine — they reassure your loved one when you're not there
  • Build a 'wandering plan' — ID bracelet, neighbors notified, medical alert app

Vocabulary

Caregiving terms, decoded.

Acronyms and jargon you'll hear from doctors, nurses, insurers, and case managers — explained the way a friend would explain them.

20 terms

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